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Safe Formula Milk Powder For G6PD Deficiency

Susu kambing merah

Susu Kambing Merah or Red Goats Milk in English is widely available in Malaysia.  It contains 90% dried goats milk with 10% red fruit.  There are no other additives - especially Soy based ingredients which means that the milk is safe for babies with G6PD deficiency.

Goats milk is apparently easier to digest and less fatty than cows milk.  Also according to the pack, it's high in nutrients such as riboflavin and vitamin B2 which apparently are good for enzymes and red blood cells.  This could be an added bonus for babies with G6PD deficiency.

How does it taste?  Not as good as breast milk!  It is drinkable though and should still go down fine in moderation.  My baby girl drinks it as a supplement when breast feeding is not convenient but I don't think she would like it all the time!  Just remember though if your baby has G6PD deficiency that a breast feeding mother must also follow a strict diet and not eat any of the disallowed "trigger" foods or medications because they can be passed to the baby via breastfeeding and cause the condition to worsen.

As far as I know this product is only available in Malaysia, but abroad you can probably find simliar powdered goats milk products.  Here the goats milk sells for about RM 68.00 for 300 grams.  That's about US$20 a pop.

Comments

hello

my baby 3 months old he has a g6pd, im looking in the net for safe infant formula milk for my baby with g6pd.. im really sad that my first baby has g6pd. you know some other formula aside from that you post? cause i live in Philippines i cannot find that milk here.. :(

dangibas's picture

Hi Jen,

You can try and order online. I just checked at Amazon and they have Goats milk... it can be delivered to phils for a small extra fee I guess. Here's the URL: http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keyw...

Did you try large supermarkets to see if they have Goats milk? In emergencies if you can't find safe milk it's ok to use Cows milk - it's just not as healthy - but fine for once in a while :)

hey jen, you can buy n mercury drugs or puregold. look for DG milk. it is dairy goats milk from new zealand. i also use that coz my son also has g6pd. it is a bit expensive though coz it only comes in small can at 475.00php. check it now! :-)

hi , im also a mother of 3mons old he has a g6pd, actually im using it since my pedia is suggesting me .. its a nestle nan hw1 its so expensive but not to think anymore coz were both thinking a good health to our baby... try this.

hi grace, did you try to use DG milk for your baby?
coz my first baby is g6pd deficient too, nan hw1 din ang suggested ng pedia
nya but it's so expensive....
is nan hw1 is best for a g6pd deficient?

hi..im a mother of 1 month old who also has a g6pd just want to ask if DG milk is still available at the supermarket here in the phillippines? pls message me back. tnx

dangibas's picture

Hi Jen,

Sorry I have no idea where to get goats milk in the Philippines, just Malaysia. Have you asked your doctor for advice? Maybe you can contact and meet other parents whose kids have G6PD in your area and get some friendly advice :)

hi i have 1 month old who have g6pd i use s26 plain ..i now worry because it hs soya leticin and i already use it for one month but as read it here i have now an idea.thanks guys continue posting prohibited foods for g6pd patient.godbless

My baby is also g6pd def. At first itried s26 second.enfalac gentle ease and now i'm using hipp organic milk at dto si baby nging comfortable hndi n xa knkbag.

hi thess..
san po kau nakabli ng DG milk na 475.00 lng?kc ako 519.00 bli ko sa mercury and 525.00 sa sm.small can lng po un 400g.

hi thess
san po kau nkabli ng DG milk na 475 lng???kc po 519 sa mercury and 525 sa sm...small can lng po un 400g..

My first baby has G6PD too.. I read all ur msgs guys thankyou for giving me an idea for what is best milk for my baby.

Hi!
DG Milk Infant Formula 0 - 6 months 400gm only and DG Milk Supplement 6 month to 3 years 400gm and 900gm is available in the Philippines in Mercury Drug and Watsons. =)

dangibas's picture

Thanks for the info... we have a few readers in the Philippines :)

hi momtoo,
thanks to your info...my son is 3mos old and still using milk with soyabean oil,thanks now i know what formula milk to buy for him.thanks a lot.
thanks too to all of respondent here.Godbless us especially our babies.:)

I'm a mother of 6 yrs old she also has g6pd. ano po yung mga milk na pwede sa 6yrs old?

Try Promil

Im a breastfeeding mom, what milk can i drink that is safe for my baby with g6pd?

dangibas's picture

Hi there,

As a breastfeeding mum you need to follow the same diet as your baby because your diet becomes your babies diet. For a good list of things you can't have check out the resource here - http://g6pddeficiency.org/index.php?cmd=contrafood

What you eat and drink is passed onto baby via breast milk so you need to be careful. It's going to be stressful but just try and get off breast milk as fast as you can so you can start to eat and drink normally again :)

hi im jaymel, i have a baby has a g6pd, my wife she drink a nestle bearbrand milk it safe for baby because my is breesrfeed?pls reply, tnx

dangibas's picture

Hi Jaymel, you better ask your doctor. It depends what's in the milk (the ingredients).

Dan

hi

my 1st baby is g6pd deficient also.....
is DG milk cheaper than Nanha? same grams (400 grams)

saan po kaau nakabili

hi my baby is 1 month old and has g6pd too. sa confirmatory test niya only o,78 yung enzyme niya. is it so risky? yung pedia ko kasi telling me na okay lang s26 gold ang milk niya.

healthy options here in the philis,.they have goats milk..

helo to all momies:
Im too wory,bcoz i cant aford to buy a best mil for my baby has g6pd. My baby's milk is bona, subrang nag aalala tlga aq. My husband work is maintenance lng kaya d nya kyang supurtahan gatas ng baby namin.

hi anne, how old is your baby? try to check lactum, it's cheaper than s26,nan and infa, but try to check milk's label because time to time some manufacturer add new ingredient(s).

hi im reyna..my 2yrs old s0n has g6pd also..sa c0nfirmat0ry result 1.4 lng ung enzyme nia...ang advice ni d0k gainplus..is it gud t0o?c0z dz milk also c0ntains s0ya lecithin...nka dalawang can palang kami ng gainplus. kc dati bearbrand & alaska.in0 obserbahan q xa,ok naman maliksi xa.late q na narealize wen came back to my pedia,&she warn me ab0ut sa milk ni bby..so nag gain plus agad aq...

hi im danilyn...my 9th mos. baby girl ako n my g6pd din....pwede b skanya ang nestle nestogen?kc s hirap ng buhay ngaun mrmi din katulad ko ang hindi makaaford ng khit murang milk formulas?tnx safe b ito?

Hi danilyn tingnan mo ang ingredients ng nestogen kung my soya lecithin xa d po yan pwede

hi im jess..my son is 1 month old has g6pd. s26 gamit namin na milk..ok lng ba yun?

kung breastfeed ang baby w/ g6pd bawal din ba kumain ang nanay ng mga bawal na pagkain?

i have a 9 month old son having g6pd. I used to feed him by enfapro A+ as my pedis prescribed. Is this formula safe for his condition? Or should I change my formula into DG Suplement? Which formula is more expensive?

Hello po...can you help me po what brand of milk without SOYA content pwde q painum sa son q may G6PD deficiency po cy. he is turning 6 mos dis month po....last week q lng po nalaman na positive cy sa G6PD deficiency tru sa confirmatory test ny

Result po ng test ny is 0.2 U/g Hb ....... di naman po inexplain samin kung taas or kunti lng ang deficiency ny..

Can you help me to understand the result?....thank you po....

DG MILK po ang sabi ng pedia ko. less protein dw kc ang need ng baby with g6pd and of course walang soya.

HI... LET UYOUR PEDIA DOCTOR READ THE RESULTS SO THAT YOU CAN UNDERSTAND,, AND YOUR DOCTOR WILL EXPLAIN WHAT DRUGS, FOODS WILL BE AVOIDED...

my baby is G6pd also,,she is 1 yr old.....and i just informed when she was 11months,,, and i'm so nervous about her right now,.and its been almost a year that she taking up ascorbc acid and infant formula with soya...what formula milk is recoomended..

hi im cel,mom 0f 4months baby,my son also has g6pd and his pedia recomend infalac milk..is it safe b?thanx a lot more power

is ascorbic acid vitamins safe for my baby who has G6PD?

I belive yes, my baby is taking ceelin vit c since birth now she is 2 yrs old wid g6pd deficiency

hi..my son also have g6pd and his pedia recomend infalac milk just want to know if it safe..and also is it safe to take ascorbic acid vitamins?thank you more power

hi my baby is turning 3 mos..ask q ln g kung safe b ang bona s g6pd positive and wat vitamin ang pwede.worried kasi ako kasi my ubo siya.help pls..tnx

hello, i am a father of 6 mons. old baby girl with g6pd. her pedia recommend "sybron" ambroxol hydrochloride for her cough.

my 1month old son also has G6PD, naka 6 cans na kami ng bonna when we found out that he has G6pd. How is it affecting him?

My 2yrs old baby girl has g6pd and since birth she is taking vit c ceelin until now
. Her % rate of g6pd is 7% still high so she can tolerate food with soy ingredients but donot give them
Too much they might cause diarrhea.

I'm also a mom of a g6pd baby girl too (1 month and 4 days).. Mga mommies don't worry too much as far as I know and according to the forum I read before as long as the milk is not a soy base it's alright. This is the milk list which I note down when reading a forum of mommies like us which their babies have a g6pd too: (as per them) their pedia recommend: enfalac a+, DG Milk, Similac Lactose free, or s26 Lactose free. I am using enfalac a+ now for my baby. :) Hope this can help!

tnx for the info. it realy help to the 1 month old baby girl of my brother,,

Tnx.....4 da adv
ice ...coz my baby take infalac a +....

my son has a g6pd and his pedia recommend hipp organic and efalac a+. for my baby i am using hipp organic.

yes may daughter also is g6pd positive and dr's recommend Hipp Organic...

hi,

I am one of moms who really care about g6pd of son. my 1 month old son also has a g6pd and his pedia told me to use hipp organic or enfalac a+. I am using hipp organic now. to all please keep on updating. thanks

Hi, do you have any idea If it is possible that a baby with g6pd would also have a congenital heart defect?

This is the first time I am reading about the Red Goats Milk which is widely available in Malaysia. The nutritious value it has looks impressive, as there are no other additives. I think it is worth trying as it digests fast and has got lesser fat content than cow’s milk. Thanks for such an informative post.

Hi, my baby also have a G6PD. She is 2 months old, before her milk is NAN ONE then we change it to Hipp per her Pedia's advise. This is an organic milk and much safer. For 900g it cost Php1,220 you can buy this in any mercury drugs.

Tanx sa info. I have a 2 months old son may g6pd din siya. Naghahanap ako ngmilk na pwd sa kanya. Salamat sa info ha.

Salamat sa info. My 2months old son who happned to have a g6pd...akala ko d na ako makahanap pa na gatas na pwde mainum na pwd sa may g6pd.

ano po pwedeng gatas sa 6 yrs old na may g6pd?

hi po ...i have son also has g6pd ...and his taking nan pro 1 he is 2 months 7days...is it safe for baby the nan pro one,it contains soya celithin?or should i change the safe one...plz advice me for better for my son...thank u

hi....ask k lang sana my daughter is turning 6 months old na this coming march 1,, worried lang kasi ako kng okey lang ba sa baby na bonna ang milk nya? she has g6pd also.

thanks & more power

Check m nlang kung may soya yan bawal din ksi ung soya sa may g6pd.

thanks for the comments guys. the baby's having similac HW until now. i found it has soya oils in it. thanks will go for DG :)

hi, it is safe for g6pd to take ceelin vitamins? and what are the safe vitamins for them (with g6pd kid)? her pedia suggest a PROMIL PRESCHOOL, is this safe? coz i think PROMIL PRESCHOOL is also soya base thats why we're so worried.

Hi mommies...
I have 6 months old baby and he have G6pd deficiency too...I used Enfalac A+ since 0-6 months sya then Enfapro A+ ngayon my pedia told me all milk has a soya but only small contain of soya so she told me it's okie to use all milk for the baby that have G6pd.but I will tell to my Pedia about DG milk?because I check Also NAN HW may soya din po..so I I decide to stick Enfa.

Hi mam i have a 1 yr. Old daughter she is also have a g6pd. I just want to ask if lactum milk is oki wit her?

hi my son age is 1 yr old and 9 months now..he always have a rashes after a few days when he eating a avoided food..but sometimes we are not control to feed him.i have a question what is the best formula milk for his age..will you please reply to me.

dangibas's picture

Ask a doctor?

Hi! My daughter is 2 years old and 7 months old now. I just want to know if what is the right milk that we can buy for her. she is a g6pd positive too. Hoping for a suggestion. thanks!

My daughter has g6pd too, she is 2mos.old and 7days by now..she consumed almost 5 boxes of 350gm of bonna w/c i become so worried after reading all the messages herewith. For bonna has a soy ingredient. Atleast all of the moms who shared their experience thought me a lot on what are those milk we shld. Use.. But still we need to seek pedias advise..
I have another question:
***I been using baby oil for her and aceite de manzanilla, does those things affect her in the future? Pls. Message me..

my daughter is also g6ph and nan hw is not good for her so i try HIPP from cow's milk improted from germany but is available in the philippines. its expensive 900g is 1164.00.

you can try it.

Helo...ung milk lng n wlang soybean oil is ung nan h.w....ang soya products kc ang isa s mga bwal s mga g6pd positve...meron nman kaung mddownload s internet n list ng mga bawal n fuds, medcine, at iba p...

Helo...ung milk lng n wlang soybean oil is ung nan h.w....ang soya products kc ang isa s mga bwal s mga g6pd positve...meron nman kaung mddownload s internet n list ng mga bawal n fuds, medcine, at iba p...

Hi! my son has g6pd it is good for him s26-gold. Also i been using johnson baby oil & aceite de manzanilla safe po ba ito? He is 2 mos. pls message me. thank you

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